Canadian Organization for Rare Disorders
Record #:
ONT00088
Last Full Update:
07 Aug 2024
Contact Information
| Office Phone | 416-969-7464 |
| Toll Free Phone | 1-877-302-7273 |
| Fax | 416-969-7420 |
| info@raredisorders.ca | |
| Website | www.raredisorders.ca |
Agency Information
| Legal Status | (50) Non Profit |
| Primary Executive | Durhane Wong-Rieger, President and Chief Executive Officer |
| Funding | Private - Donations and memberships |
Description and Service Details
| Description (Service) | National advocacy network for people and for organizations representing people with rare disorders * general information and resources Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases |
| Areas Served | Canada |
| Boundaries | Canada |
| Eligibility | Patients with rare disorders and their families, patient organizations and corporate leaders |
| Application | Visit website for memberships |
| Languages | English |
Site Information
| Site Location | Toronto (Old Toronto) |
| Located In Community | Toronto Downtown Central |
| Address & Map | 151 Bloor St W, Suite 600 Toronto, ON M5S 1S4 |
| Intersection | Avenue Rd and Bloor St W |
| Physical Access | Fully Accessible |
Categories and Classification
| Service Categories | Health Related Advocacy Groups ~ Orphan Diseases ; Support Group Clearinghouses ~ Orphan Diseases |
